Securing our genetic health: engendering trust in UK Biobank

Article Abstract:

Criticisms regarding the genetic research database UK Biobank are examined, focusing on the methods used for obtaining consent from human subjects, the manner in which this consent is framed discursively, and how these factors influence governance of the database. It is posited that restricting discussion about genetic research and the ethical issues involved may lead to a public decline in confidence in the regulatory systems that govern medicine and science.

United Kingdom, Databases, Genetic research, Bioethics, Database, CD-ROM catalog, CD-ROM database

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'Cheaper than a newcomer': on the social production of IVF policy in Israel

Article Abstract:

Israel's in vitro fertilization policy is analyzed for dominant narratives, which include the national narrative supporting international medical achievement, the personal narrative expressing compassion for childless women, and the professional narrative of expertise as a best practice for regulation.

Israel, Government domestic functions, Science & research, Research, Science and technology policy, Policy sciences, Fertilization in vitro, Discourse analysis, Health policy

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The politics of end-of-life decision-making: computerised decision-support tools, physicians' jurisdiction and morality

Article Abstract:

The legal and political aspects of end-to-life medical decision making in modern health services sector, and the usage of computerized tools for this purpose is examined.

United States, HEALTH SERVICES, Usage, Evaluation, Health care industry, Technology application, Decision support systems, Medical care decision-making authority (Law), Medical care decision making authority (Law), Right to die, Decision support software

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