Barriers to obtaining consent in dementia research: implications for surrogate decision-making

Article Abstract:

Many patients with dementia may be unable to participate in clinical trials because they have no surrogate who can give informed consent. In a study of 146 dementia patients eligible to receive palliative care as part of a clinical trial, almost half could not participate because the surrogate decision-maker could not understand the consent process or there was no surrogate decision-maker. Only four surrogate decision-makers actually refused to provide consent.

Author: Morrison, R. Sean, Ahronheim, Judith C., Meier, Diane E., Baskin, Shari A., Morris, Jane
Recruiting, Clinical trials, Dementia, Informed consent (Medical law), Informed consent, Medical care decision-making authority (Law), Medical care decision making authority (Law)

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The intersection between geriatrics and palliative care: A call for a new research agenda

Article Abstract:

Studies reveal that much focus should be given to Palliative Care which improves the quality of life for patients and caregivers with a variety of treatment, and methods to improve the knowledge about Geriatric Palliative Care are described.

Author: Morrison, R. Sean, Goldstein, Nathan E.
Methods, Palliative treatment, Palliative care, Patients, Patient care

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Rating the importance of nursing home residents' quality of life

Article Abstract:

A study analyzing the importance of various quality of life (QoL) items for hypothetical residents, with various types of impairment and those seeking nursing home care, is presented.

Author: Kane, Robert L., Rockwood, Todd, Hyer, Kathryn, Desjardins, Karen, Brassard, Andrea, Gessert, Charles, Kane, Rosalie
Disabled persons, Nursing home patients

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Subjects list: Research, United States, Quality of life
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