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The completeness of AIDS case reporting in New York City

Article Abstract:

The AIDS surveillance system in New York City (NYC), NY appears to produce thorough reports. The completeness of reporting is important for monitoring trends in the epidemic and for allocating resources. Federal funding for AIDS services is distributed, at least partially, according to the number of cases an area reports. Because 18% of the total number of AIDS cases in the US have been in NYC, inaccurate reporting of cases in NYC could also skew national statistics on AIDS. AIDS surveillance in NYC is a hospital-based system in which certain personnel from 79 hospitals report AIDS cases to the NYC Department of Health. Hospital laboratory logs, death certificates, hospital discharge records and patient registries were reviewed to assess completeness of surveillance. Overall, completeness was high, ranging from 81% to 87%. Furthermore, the chances of being unreported did not differ significantly according to age, sex, race, method of HIV infection (homosexual contact, injection drug use or other method) or area of residence.

Author: Greenberg, Alan E., Thomas, Pauline A., Hindin, Rita, Nicholas, Antonina G., Bryan, Eula L.
Publisher: American Medical Association
Publication Name: JAMA, The Journal of the American Medical Association
Subject: Health
ISSN: 0098-7484
Year: 1993
Social policy, New York, New York, AIDS (Disease)

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Evaluation of HIV case surveillance through the use of non-name unique identifiers - Maryland and Texas, 1994-1996

Article Abstract:

The use of unique identifiers (UI) rather than personal names may complicate the reporting of HIV cases. Both Maryland and Texas experimented with using a unique 12-digit identifier composed of part of the patient's social security number, birth date and codes for sex and race. However, analysis of HIV reports in both states revealed that only 60% to 70% of the reports contained all the elements of the UI. Many reports could not be matched to a separate client record containing the patient's name. In addition, many physicians did not keep the required logs linking the UI to the patients' names.

Publisher: American Medical Association
Publication Name: JAMA, The Journal of the American Medical Association
Subject: Health
ISSN: 0098-7484
Year: 1998
Evaluation, HIV infection, HIV infections, Identification numbers, Personal, Personal identification numbers

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Subjects list: Disease reporting
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