Do GPs want to test for carriers of cystic fibrosis

Article Abstract:

Forty five percent of 388 general practitioners (GPs) surveyed would want to offer community screening for cystic fibrosis (CF) carriers as part of their own services. Around 85% of CF carriers could be identified by genetic testing. CF is caused by a gene mutation which is carried by one in 25 people in the United Kingdom. Half of the GPs surveyed who have a CF patient on their registers would like to offer the screening service. The GPs are concerned, however, about the possible psychological impact on those identified as carriers and the possibility of false negative results.

Reports, Diagnosis, Genetic screening, Genetic testing, Physicians (General practice), General practitioners, Cystic fibrosis

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What they really, really want

Article Abstract:

The UK Audit Commission investigated patients' experiences of district nurses. Researchers found that the 48 patients interviewed had few complaints about their district nurses. Patients valued the nurses' technical skills, they perceived their district nurse to be their personal confidante and advocate, and they felt cared for and supported. Particular aspects of care were important to different patients. Those with continence problems, for example, valued the ability to ensure a reliable supply of continence pads.

Evaluation, Visiting nurses

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Patient roles in decision-making: do patients want to be involved in decisions concerning their medical treatment?

Article Abstract:

It is assumed that patients welcome and value patient participation, although there is a lack of firm evidence to confirm this. A study was conducted at a regional renal unit to examine the actual and preferred participation in treatment decisions by patients. It found that most preferred to take a passive role, some through lack of knowledge and others due to the severity of their condition, leading to a diminished desire to participate.

Patient compliance

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